Can you hear me

7 05 2013

I blew my students’ minds today.

No, not anything brilliant on my part: I brought up an issue in my bioethics course that I’ve mentioned in previous courses—had thought I’d mentioned previously in this course—and a number of them lost it.

I told them that there were deaf people who didn’t think there was anything wrong with being deaf, and furthermore, they’d like you to keep your cochlear implants and whatnot to yourselves, thankyouverymuch.

That did not compute.

Now, the backdrop for this moment of brain splatter was a discussion of social coercion, normalization, enhancement, disability, and morality (among other things). Somewhere in this discussion I noted that devices which are promoted as aiding the disabled might be more about assuaging the discomforts of the non-disabled. This was one of Anita Silver’s points in her essay “A Fatal Attraction to Normalizing” (in Enhancing Human Traits, ed. by Erik Parens), as exemplified by the decision of the Canadian government to push children affected by thalidomide into prostheses and forbidding them to roll or crawl. “The direction of resources to fund artificial limb design and manufacture rather than wheelchair design was influenced by the supposition that walking makes people more socially acceptable than wheeling does.”

A number of them did not like where I was going with this. So how far do we go to accommodate those people, they said. If we’re the majority, shouldn’t they, you know, have to adapt? Are we just supposed to design everything around them?

One of them even complained about ramps: Why should I have to go around and around if I just want to take the stairs?

I pointed out that ramps rarely replace stairs, but are instead treated as an addition, meaning that the stairs remained. I also noted that crappy design is bad for everyone. The building in which the class is held, Carman Hall, is a terribly designed building—you have to go down a flight of steps just to enter the building—and suggested that it’s just possible that being forced to think about accessibility for, say, wheelchair users might just lead to designs which are good for everyone. Curb cuts, I noted, are useful for those pushing strollers or, say, 3 weeks worth of laundry in a cart.

Besides, I noted, at some point we’re all, if we’re lucky, going to get old and frail, so designing for access is, in effect, designing for everyone.

In any case, my mind was a little blown by their sense that accommodating people who came in a model unlike themselves was unfair.

Okay, now back to their shorted neural circuits. Deafness, I noted, is a condition, and some who are deaf are also a part of the Deaf community. These Deaf members see themselves as distinct, not disabled, and their community as worth preserving; as such, they see cochlear implants as a way of eliminating members of that community. Furthermore, since cochlear implants are imperfect, not only will these deaf people not gain the full range of sound as hearing people, they will never gain full status as hearing people: they will also be lesser “normals” than full and “normally” Deaf.

But why would they want to be deaf? they asked. Doesn’t that limit them? Why wouldn’t they want cochlear implants?

Well, I noted, we’re all hearing in our class, so if we lost our hearing we would, in fact, experience it as a loss. But while we might be able to see only the limitations of deafness, they see other capacities enabled by it.

They were dubious. What about contacts, one of the students asked. I’d be blind without my contacts. J., I said, you would not be blind, you would simply have bad sight, which is more akin to being hard of hearing than being deaf.

(That said, it was a provocative question: is their a Blind community akin to the Deaf community? And what would be the implications of that? What are the implications of a lack of a Blind community?)

I’m used to students gasping a bit at the thought that Deaf people might not have a problem with their own deafness, but I can usually get them to consider that the problem with deafness is the problem that hearing people have with deafness. No, I’m trying to force them to accept the Deaf argument—I’m not quite sure what to make of it myself—but I do want to crowbar them out of their own defaults, their own unthinking attachments to normal.

There are streams within bioethics which maintain their own unthinking attachments to normal, as well as those who prefer to poke a stick into the concept. I’m more in the latter camp (big surprise), but as I think normalizing is impossible to avoid, my approach is simply to unsettle, and be unsettled by, the normal, and go from there.

The students weren’t so much unsettled as shocked, and given that shocking can lead to reaction rather than reflection, I guess I shouldn’t be shocked that they held ever tighter to their own normality.




7 responses

8 05 2013

Yeah, this is thecreepy aspect of some of the differently enabled . There are one or two who take offence at the suggestion that they may need help.

8 05 2013

sadly the growing research into cognitive-biases shows that when most people are confronted with realities that cut against their pre-judices they get more entrenched (which explains what happens in so many online comment threads) and I’ve yet to see a pedagogical response/approach that really takes this into account.

8 05 2013
8 05 2013

@sagitex: I don’t think it’s creepy that some think they don’t need help; who wants to hear they need fixing if they don’t think they’re broken?

@dmf: Constant skepticism, constant reflection—that’s the only way out I can see. Now, how do you motivate that. . . ?

8 05 2013

heh, same way that you make people care…

10 05 2013

Is it possible that the students reaction was less shock about why someone wouldn’t want the implants, but more a reflection of their own fears? My Mom taught hard-of-hearing students when I was a kid, and most of them had the condition since they were born, so that was their “normal” (whatever “normal” is). So I’m thinking your students were conceptualizing the problem in terms of their fear of losing their hearing and, by extension, visualizing that they would want to get the sense back.

11 05 2013
TheDeafia | Can you hear me? Part 1 & 2

[…] Can you hear meI blew my students’ minds today. No, not anything brilliant on my part: I brought up an issue in my bioethics course that I’ve mentioned in previous courses-had thought I’d mentioned previously in this course-and a number of them lost it. […]

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