It’s been a long time, but I’m trying to make my way back.
May you have a peaceful holiday.
It’s been a long time, but I’m trying to make my way back.
May you have a peaceful holiday.
So long, 2020.
I have been seeing doctors and nurses and techs since the end of May: one primary care physician, one dermatologist, two radiologists, three oncologists, many nurses and many techs.
Also since the end of May: multiple blood tests, multiple mammograms, multiple ultrasounds, multiple biopsies, one COVID test, one surgery, multiple x-rays, and twenty radiation treatments.
And now I am done with all of them—until November, that is.
The acute phase of my treatment ended last week; the continuing (starting with hormone treatments) begins this week, and includes more docs and nurses and techs and tests in the future.
But this week, and all of October, I have no appointments, and only the daily pill to remind me that I am, still, a cancer patient.
Well, that, and the number the radiation did on my skin. It wasn’t as bad as I thought it would be—discomfort, yes, but pain, not really—but it’s unpleasant, all the same. It should start getting better, mmm, around now, and continue to do so over the next month or two.
Still, no appointments. No doctors, no nurses, no techs, no temperature checks, no forms, no medical machines. Just day after day of not having to be in a clinic in Chelsea or Midtown East or the UES or Union Square. Just day after day of my life, if only for awhile.
I’ll take it.
So I have cancer.
Stage 1A breast cancer, to be treated with surgery and radiation, possibly chemo, and long-term hormone treatment. Prognosis is good.
~~~
I was years overdue for my first mammogram, when I finally followed through on one of the many scrips my doctor urged on me and scheduled one for early June.
They did the mammo and a breast ultrasound, and sent me on my way. Less than a week later, I got a call: Hey, there was an issue with one side, could you come back for another round?
It’s probably nothing, they said.
So, second mammogram/ultrasound in my life, less than a week after my first one. Then another call: Yeah, we found something, we’d like to biopsy it, just to be sure.
It’s probably nothing, they said.
Biopsy, then. The radiologist was very nice, told me everything that she was doing, said, you guess it, It’s probably nothing.
Four days after that: It’s something.
The first days after the diagnosis, I was simply annoyed. What the hell, I griped to friends, like 2020 hasn’t been bad enough. Then I was angry, because anger is What I Do—and that was useful, because I had follow-up appointments and arrangements to be made and anger gave me the energy to do what, as I griped yet again, was basically a job.
Cancer is a job.
But now, now I’m in the lull before the surgery. I have one appointment at the end of this week, a covid test next week, and then two days after that, surgery.
Anger doesn’t work so well for lulls, for waiting. It worked when I thought that cancer was something I’d have to fit into my life, but not for the reality that my life is something I’ll have to rearrange around the cancer—for the next few months, at least, likely longer.
I’m not afraid that this will kill me. It might, but it’s been caught early, and if it does kill me, it likely won’t be anytime soon.
No, I am unsettled by what I do know—that I am in for a hard time—and uncertain about the rest.
This is my life now, my life with cancer, and I’ll have to figure out how to live it.
The walking has become a thing.
I started the night-walks as a distraction from myself, thought I’d go out every once and awhile, but it’s been every night since that first night—with the exception of this past Saturday, when I day-walked.
Mistake.
It was sunny, and while I only hate the sun in July and most of August, it was all wrong. Too bright, too hard: everything was too distinct.
I was restless at home, and thought, what the hell, get my walk in now, maybe venture down some of the alleys I had spotted in Crown Heights.
Aside: Yes, alleys! I love alleys, but Brooklyn is not known for them, and I pretty much assumed you could only find them in a few, tv-famous areas of Manhattan, but one night-walk through CH and I spotted alley after alley after alley.
First thought: Am I going to go down there? Hell, yeah!
Second thought: It’s dark, and this is still New York.
So I waited until Saturday, and as I was making my way back through CH, I glimpsed down those alleys and thought: No.
We’re all mostly confined to our own patches, and for me to have strolled through that back patch would have felt like trespassing, like I was impinging upon what little private space those people had.
I don’t know if that makes sense, but that is the sense I had. We’re mostly tethered to those private spaces, but to have walked—in a public lane, to be sure—in the back of that space would have seemed a violation.
Anyway. Back to the main drag: Not only was everything too set apart in the day, it was also much more obvious that the city was shut down. Empty playgrounds on a sunny day are not normal, and all of the shops which should have been open were instead gated, some with signs saying Sorry. . . COVID-19. . . .
Those signs are still there at night, of course, but pulled-down gates at night are the norm.
Is that it? That night-walking allows some normalcy that the light strips away?
Eh, I don’t think so. My area of Brooklyn is a social place, and were it not for this virus people would be out on the corners or stoops just hanging out wherever; now, there are few of us out.
More likely is that that initial night-walk awakened the memory that this is something I can do; whatever else happens, this I can do.
I am slowly going mad.
I like being alone. I like choosing to be alone. To be alone because I can be nothing else is. . . too much, not enough. Not nearly enough.
How are you?
~~~
I used to walk at night, when I was younger. I walked around Falls some, but this really took off when I lived in Madison. Over to Lake Mendota, out to Picnic Point, or back behind Breese Terrace, looping around the chancellor’s house, sitting on swings in dark parks in neighborhoods built for kid-kids, not college kids.
This continued in grad school, Minneapolis. Walks through Loring Park and the sculpture garden and down Nicollet and to the river, bridges over the river.
I wasn’t well, then, but I can’t fault the nighttime roaming. And my sorrows got some airing-out.
I still walk, of course, but in New York, the walking is always to and fro, from here to there. And almost always during the day.
~~~
But I am, as I said, slowly going mad. I have work—teaching at a distance and still the second job (also at a distance)—and we are not literally locked down. I go across the street for milk and yogurt, over to Flatbush for bagels.
We can still run. I still run.
Here to there, here to there, and home again.
~~~
So, tonight, a night stroll, just around, just to see.
I live near central Brooklyn’s hospital complex. I’m used to ambulances, so I can’t say if there are more; there are plenty, regardless.
East down my street. There were few of us out, some of us masked, some not. The closer to the hospital, the more scrubs, the more masks. Across the street from an ER, in one fast-food place, everyone, workers, customers, wore masks; in the other, none did.
Further east. It’s so quiet. Usually in a damp night sound carries, but tonight, the silence carried.
Turn north, past black women in blue scrubs, bonnets, masks; past the psychiatric buildings, high fences all around, light in every window.
There’s a school, half-lit and empty, classrooms above in a long slow curve around the side, like a weary spaceship waiting for its crew.
Down past the handball court, I notice the one-story railroad apartments. This is low Brooklyn, hidden behind the height of the hospitals and the arch new buildings for the nursing students and medical residents.
I pass a couple of men, one offering the other gloves. Nah, man, he says, holding up a roll of paper towels, I got this. I lose that thread as I notice a building that looks abandoned, but there’s a red blip for keyless entry.
Crabwise, west now. A man stepping off his stoop smiles and says “Make it home safe, mama.” I half-say “You, too,” before realizing he’s leaving his home. “Have a safe night,” I call instead.
Down Nostrand, the noise picks up. The usual ambulances, and the one alarm, a block away? that sounds like a whole building yelling out a London OO-EE! OO-EE!
The women waiting at the bus stop wear masks. I check the driver; he’s wearing a mask.
My laundromat, usually open, is closed, gates where windows would be. Gates up and down the street.
I forget to look up to the sky before heading in.
~~~
I have to remember, there is more than just me, more than the texts and the emails and the voices in the radio. We are not abstractions.
Brooklyn is right here, it’s all around me, a real place.
It’s easy to miss this, during the day, when it all seems like a backdrop, mere scenery on my way to somewhere else.
I forgot that I can see so much better at night.
So, being middle-aged apparently means I don’t sleep well and even thinking about food makes me gain weight.
I do not like this. I like sleep and not-gaining weight.
I’m pretty much right in the middle of what counts as “normal” or healthy for my height, but clothes that had been loose are snug and there is a roundness that I can no longer ignore.
I’m not terribly vain, but, goddammit, I do not like how this looks or feels.
So I decided to lose a bit of weight—literally, just a bit. I’m a small person, so while even small gains are noticeable, it won’t take much for my clothes to stop hugging me.
Still, I want something a bit more precise than my jeans to keep track, which means that I have, for the first time in my life, purchased a scale.
Now, I’ve certainly weighed myself before. We had a scale when I was a kid, which I used regularly, and I’d weigh myself weekly on a magnificent old scale in the locker room at the U of Minnesota’s rec center.
Kinda like this.
But after I left Minnesota my weight-measuring days dwindled to not-quite-yearly doctor’s visits. My weight has been mostly stable, and I figured that my clothes would tell me when I’d gained a few.
Well, them clothes be yellin’, and I thought, Goddammit, if I really want to keep track of my weight, I’m gonna have to, y’know, keep track of my weight.
So I bought a goddamned scale, weighed myself, and have decided that weekly weigh-ins were the way to go.
Now, all of this is the prelude bait to the actual switch: this is less about the weight than the scale, and what it does.
It measures.
Shocking, I know, but in the past decade (or. . . two?) I’ve become rather anti-measurement. For example, I used to track my running times, and then at some point I thought, This is just stressing me out, so I stopped wearing a watch.
I used to balance my checkbook, but at some point I thought, Geez, I can get the balance at the ATM or online, so what’s the point?
I have a list of all of my cds and I still maintain a database of my books, but for a shit-ton of other matters, personal and professional, I just let it all go.
That wasn’t the worst strategy, honestly, but it has had the unintended effect of making me shy away from all kinds of non-work-required measurements and tracking, and increase my anxiety over said measurements and tracking.
Which is ridiculous, especially since the results, when I finally do check them, are usually fine.
Thus, my decision to purchase a scale was one small blow against denial, one small step for self-accountability, and one small way for me to calm the fuck down about myself.
It’s ridiculous, I know, but it just might work. A bit.
I happily saw shit on Saturday.
Well, I didn’t see “shit”, per se; instead, I saw what happens to shit at the Newtown Creek Wastewater Treatment Plant. C. had gotten tickets for a tour via OpenHouse New York, one of those nifty freebies available to New Yorkers which I always think I should do! and then forget to do. C did not forget.
The tour started with a lecture by an assistant director at the plant, during which he talked about the process by which water and waste makes it way to the plant, how garbage (whatever happened to fall into sewers) gets removed, what happens when its (BABY WIPES) are not and how non-removed trash (BABY WIPES) gum up the works and makes him very unhappy.
Guys, baby wipes in the toilet are bad. DON’T FLUSH BABY WIPES.
The wastewater is then cycloned and centrifuged and filtered and munched on by aerobic and anaerobic bacteria, biosolids (including food waste) is shunted off for re-use, and the 95%-clean water is piped into the East River. The assistant director (who hates BABY WIPES) pointed out that, not to brag or anything, but the EPA only requires 85%-clean.
Anyway, the lecture was good and informative and he had props of the water at various stages, but, really, we were there for the Digesters Eggs.
There are two sets of four, and they sent us up to the top, 10 at a time, in a verrrrrry slow elevator.
The view was lovely:
I thought it might stink, but, really, it didn’t. There were portholes at the top through which you could look at the churning water, but absent a leak around these seals (which, okay, one or two of the eggs had leaky seals), nothin’.
I don’t know what these are, but you can see get a sense of how huge this site is:
This was and is a highly industrialized area of Brooklyn: Newtown Creek itself is hella polluted from over a century of industry, and goddess only knows what’s in the ground. Given that pollution is the ultimate anti-gentrifier, the area hasn’t been overtaken by lofts and hipster bars; instead, there are metal recycling businesses across the street from the plant, and National Grid (gas) has facilities in the area.
In fact, National Grid is in the early stages of building its own facility on the plant to capture, process, and use the methane produced via the Digester Eggs. Sustainability, baby!
The plant does try to capture and reuse the methane for its own power purposes, but their storage is limited; further, the bladder inside a storage facility had collapsed, so it was being flamed-off, here:
It was all very cool, and C and I agreed that it would be great if she (who’s finishing an environmental science degree) got a job here.
I know, most visitors to New York never leave Manhattan, and, honestly, that’s fine! There’s lots to see in Manhattan!
But Manhattan is onstage, and as much as I thought when younger that I wanted an onstage life, I have come to appreciate the gears of backstage. And it really doesn’t get more backstage than waste treatment.
I’ve mentioned before my attempt to grasp modern ideologies, an attempt since grown into a project I’m calling Modernity’s Ideologies.
Here, in maximally-minimalist form, is my sketch of the argument:
It’s hard to see (click to, y’know, see it), but the basic outline is MODERNITY as historical moment; Liberalism, Totalitarianism, and Reaction as worldviews; the attendant ideologies to these worldviews; and, finally, the types of regimes most compatible to these worldviews & ideologies.
The ideologies in the chart proper are referred to as ‘governing ideologies’: these refer to ideologies which offer a more-complete view of government and politics, which take account of individuals, groups, society, culture, economics, and governmental institutions. ‘Adjunct ideologies’, listed below the chart, are so-called because they are incomplete: they may cover some aspect of politics, but are unable on their own to provide a full and practical understanding of politics.
These are, of course, highly contestable claims; libertarians and anarchists, in particular, are likely to assert the wholeness of their ideologies (and, shoot, I should probably add ‘communitarianism’ to the list of adjuncts). I am unconvinced, although I do recognized that I’ll need to make the case for their adjunct status. As it stands, I argue that adjuncts may be fitted (more and less easily) with the various governing ideologies, that you could find, say, black liberation or women’s liberation accompanying liberalism or reform socialism—just as you could find white supremacism and anti-Semitism accompanying the same.
Anyway, the basic argument is that modernity emerges in European history and in so doing provides opportunities for the development of new worldviews, which in turn give rise to various worldviews. Liberalism and Totalitarianism are included on the same line insofar as both worldviews (or Weltanschauungen—I think I should stick to ‘worldview’ but oh, I’d like to sneak in that bit of German) accept modernity and the forward movement of time; Reaction rejects modernity and looks to the past.
Note as well that I list no ideologies coming out of Reaction. This is because I accept the view of ideology as a modern phenomenon; insofar as Reactionaries reject modernity, so too do they fail to develop ideologies. Reactionary regimes, however, lasted centuries into modernity: arguably, they didn’t disappear until the end of WWI.
And, again, this chart arises from European history: I make no claims about the history of ideologies elsewhere. Given that ideas, like people, travel—see communism in Asia, for example—I’m not arguing for the geographic and cultural exclusivity of these ideologies; rather, I haven’t done the work to make any claims one way or the other. Scholars steeped in the histories of the rest of the world would almost certainly generate their own, distinct, genealogies.
I have a lot of work to do: define modernity, define Europe, and then, oh yes, the worldviews and the ideologies themselves. I also have to make decisions regarding the spread of these ideas as Europeans colonized other parts of the world: do I stick strictly to the continent, or look European ideologies in, say, the Americas, in India, across Africa?
Finally, I’ll have a last chapter, ‘Post-Modernities?’ in which I’ll take up the challenges of those who think we’re already beyond. I used to be in that group, but now think, no, we’re still in modernity, frayed though it may be.
Anyway, when I refer in the future to any kind of ideologies, this is how I’ll be making sense of them. Whether it makes sense to anyone else remains to be seen.